So so important to discuss with your families about your wishes, this article is scary,
B+, B awesome, Believe in Organ Donation 🙏
Wow.. Simply lost for words again… Mollie you are having a gigantic ripple effect on so many people. Our sacrifice in loosing you is yet again inspiring so many others to have the courage to face life head on no matter what the challenge Is and to follow their dreams.
Mollie faced many struggles in her short life. Unknown to many,Mollie suffered from a lot of anxiety and depression issues along side her medical struggles. In the last year especially of mollies life she found it incredibly difficult to cope with The challenges and pressures that we all have growing up. Mental Health Issues are often mistreated or frowned upon, yet affect so many of us at least some point in your lives.
Sadly we were unable to find any help for mollie through the NHS. There have been far to many cutbacks in the mental health services and to many young people are being left to cope on their own.
Mollie was blessed to have met a very special earth angel who empowered mollie to become a better version of herself.
This unique lady is Alison Knowles. She is a Cognitive hypnotherapist and I believe so stronly that she was ment to come into our lives. Because of ‘Allie’ Mollie was able to emerge from her darkness, turn a corner and believe in herself once again.
Mollie had said to us in numerous occasions in her last year that Her world was turned around the day she met Allie.
And so the ripple effect continues… Since mollies passing Allie has been incredibly inspired by Mollie to publish her own book
” Ollie And His Superpowers”
In Alli’s own words
“Ollie was created to help those who struggle in today’s world and gives them courage and empower them to be the best version of themselves as they can. When I am asked about the dedication of Ollie… Here she is.
A lady that god lent us for a short time who taught so much while she was with us and inspires so much in us continually. Let’s put it this way,I was taught we are our only limitations in class. Mole showed me that in reality.”
Follow the link to get yourself a copy!
This book is a must read for all… Don’t we all need a Allie in our lives …
We are lost for words that Allie chose to dedicate this book to our angel mole.
We are eternally grateful to have met you and to have you in our lives Allie, and for all the empowerment you gave to mollie. and are continuing to give to others.
You were a very special person in her life and our forever a very special person in our lives always. ❤️
Mollie is watching over you and is so proud of you for following your dreams in publishing this book! I can just hear her excitement and see her smiling from ear to ear with pride 🙂
Lauren and monica ❤
Wow, what a whirlwind the last 2 months have been. Needless to say, our family and close friends are still experiencing the immense pain and loss of what it is like to lose a loved one. But, through the waves of grief we have been getting so much comfort knowing that Mollie has touched so many hearts in her short time on this earth. So many of her lovely friends have visited and shared stories with us which really have kept us going. It’s so incredible to know Mollie inspired and helped so many people through her short life with her B+ attitude, words of encouragement and advice to others. We just know that Mollie’s legacy of love will live on forever.
To date our Waiting Game blog has had over 66,000 views world wide! Thank you so much everyone! It truly is overwhelming! This equates to potentially 66,000 people now being on the donor register… (this might be a little optimistic!) But I have had messages from hundreds of you telling me you’ve signed up on the basis of the blog which is just so incredibly touching ❤️ We have been overwhelmed by the response to the blog and are now more determined and inspired than ever to continue with our mission in Mollie’s memory.
So far Mollie’s memory has raised £3,325 for the CLDF and £1,000 for the British Liver Disease Foundation. This does not include the monies from the events organised by St Ivo School or the Ros Clarke School of Dance. This is just an incredible sum of money, and we will absolutely keep going! We have lots more events coming up throughout the year that are all going to be shared on the blog so just watch this space 🙂
The blog is still our little diary, a place to reflect on our journey in grief so far and share memories of Mollie. But it has also become a centre point for our fund raising campaign, to raise funds for the Children’s Liver Disease Foundation, to get people signed up on the blood and organ donation register through the B+ message and hopefully in the long term, make changes to the way organ and blood donation is treated in the UK. In this post, we just wanted to explain some of our hopes and aims that we want to achieve through the B+ campaign!
As you all know, Mollie had a very rare blood group, B+. Because it was that B+ blood that kept Mols going, B+ has become Mollies legacy and the logo behind our campaign. Our family has lived by this motto as it symbolises lots of different meanings to us…
B+ Mollies Unique Blood Type,
B+ for Barton (our Family name ,)
B+ for Birmingham Hospital where she was cared for her whole life,
B+ because even in the darkest days of our grief we are inspired by Mollies positivity, courage and strength of character right to the end.
Mollie and I initially started this blog to to share her journey and to raise awareness for the desperate need for organ and blood donors to come forward. We’d hoped that Mollie would get the organ she needed and we could spread the joy of organ donation. Of course, that didn’t happen and that is still crushing to accept. It is only when your family is affected head on, that you can really appreciate the desperate need for blood donation and organ donation. For us and for Mollie it was literally a matter of life and death. Without people taking time out of their busy lives to donate blood or sign up to become an organ donor (which only takes two seconds online) more and more people are going to be denied a second chance of life.
About 1000 people die every year in the UK whilst waiting for a transplant. Sadly Mollie was one of them. For example, at the end of the last financial year 6,592 people were on the kidney transplant waiting list, only 1,838 were transplanted. Future demand for organ donation is going to continue to increase due to the rapid rise in some diseases and an ageing population. There are currently over 10,000 people waiting for a transplant in the UK. Something has got to happen fast and people have got to wake up to this organ shortage. We can all make a difference, it only takes a minute!
Whilst it is important to respect individual choice, religious and other beliefs, the harsh reality is that when a person dies often healthy organs are wasted. One person has the potential to save 9 others by donating their organs once their gone. It really is the most wonderful thing a human being can do for another, the gift of a second chance of life once yours has ended. What a beautiful legacy to leave behind.
One of the things that kept Mollie going and gave her the best chance was that she received more than a dozen units of blood+ blood products on the ICU. We are so grateful for every individual blood donor which helped to support her life for as long as possible until sadly she lost her battle. It has been brought to my attention recently that are a significant amount of people who would love to be able to give blood that can’t. For example I would give blood in a heart beat but I am unable to at the moment as I had Dengue fever a few years back. Georgia has contacted the blood donor service a number of times to seek a change, but is unable to give blood because she has had a blood transfusion in the past. Sexually active gay men can’t give blood. If you have had a tattoo in the last 4 months you can’t give blood. The ridiculous list goes on…
We feel that these rules need changing, improvements and advancements to on site blood screening would solve most of these issues. Georgia was told 5 years ago that the rules on post-transfusion donors were to be changing but that STILL hasn’t happened.
Another incredible thing that should be fairly simple to implement is something they are already doing in Sweden. All blood donors in Sweden are now notified by text when their blood has reached someone else and helped to save their life! What an amazing, uplifting positive message to receive! It is one of our goals also to bring this personal touch over to the UK.
So there are things that need changing to enable an improvement in the process and that’s something we want to help move towards. But the most crucial point to remember is this; if you would be willing to take blood or an organ you should feel morally obliged to give yours too. I don’t see how that is debatable. Life is busy, and our generation is often perceived as fairly self centred and I’m no exception. But it’s so important sometimes to just stop and breathe. Do something amazing today!
So please sign up today, keep posting your B+ selfies to The Waiting Game on Facebook 😀 let us know where your B+ positive items take you! Share and spread the B+ love wherever you go! It’s so so lovely to see so many people wearing them all around the world! Where will you take yours?
All my love,
Lauren (and Georgia!) xx
A Big Big Thankyou to all who helped out at Theatre Artz Summer show! You guys put on a fab show! So excited to see the video! Thank you to every one for helping out with collecting money for the Children’s Liver Disease Foundation!
We raised a total of £318.50 on the day! Another great amount one top of everything else! 🙏 can’t thank you all enough,
Donations are still being added to her justgiving page which is just so brilliant!
Follow this link to the Children’s Liver Disease Foundation Website to see where all your generous money goes and how it helps other families facing Liver Disease and supports Medical research into a numerous of different Liver Diseases in young Children, Teenagers and young adults.
The Legacy Mollie has left behind inspires and drives us to help make any change where ever we can when we can ❤️ You inspire us to be better Girlie ❤️🙏
Keep spreading that B+ love where ever you are …. 🙏
A few Photos from Theatre Artz Summer Show Very Kindly Showing their Support in memory of Mollie to the CLDF… Can’t thank you all enough 🙏